Endings and Beginnings

 

We think that a New Year, our artificial numbering of the orbits of the sun since the possible birth of a son of a god plus a couple of days, is significant. That we have to stay up until midnight (in our time zone?) to "see it in." Our mayor has ordered that bars and restaurants cut it short for a 10:30p.m. curfew as COVID-19 surges in our community. The state has sued the city for trying to enforce this order. 

There are real events in time, birth and death, and sunrise and sunset. A year and its seasons. But we arbitrarily label them to give us a sense of control and order. So tomorrow is no different than today. Except that it's time to worry about taxes. To wind up our bookkeeping. To write a different number at the end of the thing we call a date. We try to wrap it up in the media with lists of deaths, lists of bests, etc.

The COVID-19 Pandemic does not respect your new calendar or planner. It surges on. And that has made me realize, more than ever, that there are no magic dates or deadlines except the natural ones. 

Since the pandemic we often drive somewhere and walk around outside, keeping away from people. We have walked in a cemetery a few miles away quite a bit. In the photo, FFP (my husband) looks at the simple headstones for his parents. The space to his right is ours. There isn't room for two coffins (no double stacking here, unlike where my parents are buried). We will allegedly be cremated and placed there. We have talked during the last months of isolation about buying a marker. But, perhaps, we won't even have one. 

There isn't much real significance to the day of your death. We arbitrarily assign it based on our system. My mother's day of death was August 28, 2002. August 28 was her younger sister's birthday. We cling to significance, though. I once read a book on probability that said that the chance a person died in the quarter after their birthday was much higher than the 1/4 you might expect. As if people wanted to and in some cases did will themselves to pass that marker. 

We don't age by years, though. We age by bits and drabs and tiny insults. We give the arrival of a new year an artificial power. Whereas the actual day of birth and death are significant events, their anniversaries are not, really, except in our brains. 

I am not religious, but my parents were. I put this bible verse on my dad's obituary. 

"A good name is better than precious ointment; and the day of death than the day of one's birth." Ecclesiastes 7:1

While we celebrate anniversaries of days and the flipping of the calendar, anniversaries are our arbitrary triggers of memory. 

Health and Hope, My Medical Nihilism

This is a recent sunrise from our apartment, zoomed in from the balcony to the Rainey Street area. Our views keep getting more and more restricted. So it goes. Things change. But if you live another day you will see the effects of us spinning toward the sun in a daily event we call sunrise but which we all know if just us spinning around old Sol.

I am a medical nihilist. I learned this from one of the last doctors I saw regularly. I was describing how, generally, I felt things would get better on their own or, if not, that the diagnosis and proper and effective treatment was a pipe dream. He said they learned of such patients in medical school and they were called 'medical nihilists.'

I know how this attitude came about.

When I was about ten, scaly red patches that had some 'structure' (seeming to go into layers of the dermis) appeared on my body and scalp. My dad took me to a doctor who correctly diagnosed this as psoriasis. I learned to spell it. I learned that there was really no cure, only treatments. Pine tar baths. UV. I was actually treated to an intense sunlamp in a clinic with the nurses carefully exposing specific areas of skin for timed minutes. If I got one of those beach sunburns that we did in the 1960s, lesions would magically disappear, the only evidence being an unburned circle of skin. (You are thinking skin cancer, I bet. Maybe I have it. Hasn't been diagnosed.) So I had something that wasn't going to kill me but wouldn't go away except when you hurt yourself. I'm 70 and neither disease nor cure has killed me.

When I reached puberty and started having periods I felt the worst most unrelenting pain I'd ever felt. My mother took me to doctors. Not when I was in pain, mind you, that would be gross to visit a doctor while bleeding. The doctors (male and female alike) assured me that it was 'normal' or 'all in my mind.' I remember telling one female doctor that I bought OTC pain meds and abused them by taking lots more than the directions said was safe. That was OK, she said. I suffered monthly. I used heating pads and pain meds. Noone really cared except for my mother and sister. They seemed to feel helpless. After college when I was working I was living temporarily with my parents. One Saturday I got up and was going to Denton to see some friends. (I went to college there.) I felt weird. I wasn't having my period, but I had a little abdominal pain. Not as bad as a period. But I had this weird feeling that something was in my gut tugging on my insides. If I'd been having a period, I'm sure I would have thought nothing of the pain or feeling. My mother worried I had appendicitis when I described the pain on the right side. She drove me to a nearby osteopathic hospital instead of letting me go see my friends. The doctor on duty pressed his fingers into the right side of my abdomen and released quickly. This is apparently a time-honored way to diagnose an infected appendix. It did hurt. Then I think they took blood, saw a high white blood count and took an Xray. After the Xray, the doctor stopped them prepping me and rushed me to an operating room. His distress was apparently palpable because my mother became distressed. I had been given a sedative preparatory to anesthetic and, being very susceptible, was out of it. I believe the surgeon thought my appendix was ruptured. He did an abdominal exploratory and discovered not a rupture but an outsized ovary, an infected appendix and many adhesions attaching to stomach, intestines, abdominal wall, etc. He believed it was endometriosis, a condition where endometrium tissue appears in some other place than the lining of the uterus. But he sent some of the tissue from the removed ovary and adhesions to a lab for testing. My mother was distraught, certain it was cancer. She finally found my dad and he sat up all night with me. It isn't pleasant to have such surgery without advance notice not to eat or drink. But, yes, all my pain in the past? It was real. But it was only diagnosed when my appendix became infected, perhaps incidentally, perhaps because of the monthly internal bleeding and sloughing into my abdomen. It wasn't cancer. At least this was curable (get rid of the misplaced tissue, which the surgeon did amazingly well apparently). But what a way to finally get a diagnosis. I had never heard of the condition. I later learned that it often kills people with bowel obstruction and other things.

Something will kill me. Maybe the flu. Although I get a flu shot these days in spite of my nihilism. I do it for the 'herd' hoping that mine and others vaccinations will save other people. Maybe a heart attack. Maybe a stroke. (My sister had a hemorraghic stroke when she was 55. This is a genetic weakness of a vessel, aneurysm, in the brain that ruptures or leaks. My mother acquired a mysterious convulsive condition at 55 and I wondered if she had an aneurysm that just never burst. I was glad to glide by 55 without either condition.) Maybe I'll get cancer. My dad had prostate cancer. The treatment nearly killed him years later. He was diagnosed in the heydey of the PSA test. They biopsied multiple times to find a small cancerous tumor. Today it might not be treated. The radiation scarred him so that years later he started to bleed to death from it. My mother died from Multiple Myeloma. After a few years of frustrating misdiagnosis and treatment of my mother as a someone who had psychosomatic illnesses (sometimes by the family), she was diagnosed at stage four. I'd never heard of the disease. It finished killing her in three months. She never got to come home from the hospital. At the time this cancer was a certain death sentence, essentially incurable and barely treatable. A forgotten blood cancer. Things have changed some in the last sixteen years, but it's still not pretty. It's hard to see how my mother's 'care' really helped her.

So, yeah, something will kill me. But I mostly eschew drugs and tests and doctors. Oh, I might discover something 'early' and survive instead of succumbing. But really, I am happy to be 70 and not suffering that much. I can still walk good distances. I need to lose weight and exercise more and eat better foods. But you can't really cure old age. I wonder what my end will be like. Through the lens of social media and the experience of close friends and family, I see many endings. Dementia, stroke, heart attack, accident, cancer. One friend has survived Multiple Myeloma for twelve years albeit with all kinds of invasive and debilitating treatments. I have friends with ALS and MS diagnoses. Another friend with a recent Multiple Myeloma diagnosis. I lost count of the people I know who've been treated for breast cancer. My husband had a diagnosis and treatment for a rare cancer, sebaceous cell carcinoma. He was very lucky. But...it was not caught early and rather misdiagnosed for over two years.

I'm sure I'll pay a price for my casual attitude toward the wonders of medicine. I'm not anti-science. All the rest of you should get tested for everything, take statins, etc. etc. (And get a flu shot for heaven's sake.) I'm the control group. Some of us have to get old without all that intervention. My first goal was 70. Now I'm looking at 75, which, really is enough for anyone. I'm just hoping to avoid dementia so I can appreciate my victory!

Getting My Affairs in Order

If I have any resolutions (I don't really do them unless I do), it is all about 'getting my affairs in order.' People who are given a fatal diagnosis are often encouraged to do this. But we will all die. And I worry about troubling those I leave behind with pesky details.

I'll probably live another twenty years. (And outlive my money.) But you never know.

When FFP and I were first married, we read an article in a magazine. An elderly man had 'willed' himself to live during his wife's last fatal illness and then lived long enough to see her memorial headstone erected on her grave. I told FFP he needed to do that for me. I'd like to hold him to that only I worry about the things I do in our domestic and financial partnership that I haven't sufficiently explained. I worry about possessions that I'd leave behind that would seem burdensome. I went through first my mother's possessions, then my dad's and then FFP's parents.

We are taking down the Christmas decorations. The ones above are on top of a cabinet that you have to get the ladder out to reach. I haven't done that yet. What will someone make of all those bendies when I'm gone? And even more so, when both of us are gone. I'd like to get a jump on tossing stuff. (Although I think the Christmas 'toys' I put out this year are going to stay until I'm gone.)

I'd also like to feel like FFP could figure out the bills I pay, the WEB space and domains we own, how I organize various things, how I continuously balance our cash accounts, how I account for his Subchapter S business and communicate with the CPA to get all the tax forms done.

I don't know how many times I've started on this task and how many ways I've tried to do it. But maybe 2018 is the year. If I'm lucky.

Speaking of luck I ate black-eyed peas and cornbread and collard greens. We attended two 'good luck' New Year's Day parties. At one they grilled sardines which, I learned, some believe to be a good luck food. Fine by me because I love sardines and these were delicious.

And good luck to all the Holidailies folks out there who've been writing this month. I've enjoyed reading a few. Until next year.

I Wish I'd Paid More Attention to Mythology

I am attacking my problem with sloth. It was next in line after gluttony. I think I conquered that in the last few weeks. (Oddly, I do better with my eating and drinking during the holidays than other times.) However, I still allow myself to work the crossword and Ken-Ken in The New York Times before I do much of anything else but make coffee in the morning. In today's crossword, there was a 40-down answer 'Atropos' which was clued 'Fate Who Cuts the Thread of Life.' I did not know this. It's Tuesday and I expect a little easier ride. Plus every time there is a question about Greek mythology, I think of a little drama from a Junior High English class. We were studying all these myths and there was to be a test. I thought it was a very useless study. After all, these were silly beliefs of the ancients. I liked that teacher, and if I'd realized how much that study would matter vis-a-vis word origins (I loved words) and literary tropes (I was starting to love literature) I would have been happy to learn it. I flunked the test, but the teacher, who also liked me, I think, told my mother to make me study it and retake the thing. I got a better grade. But there was a block there still to retaining stuff about these myths. Now I wish I'd learned it all much as I wish I'd learned the Christian Bible, the myths of my own tribe. And not just to do Crosswords and excel at home yelling at Jeopardy. I really think it's useful to know what people once believed and, for that matter, what they believe now. I tell myself I'm going to read the King James Bible and Bullfinch's Mythology. But I probably won't do it. By the way, the Roman equivalent of this Fate is Morta.

And while I'm off on this tangent I remember this same teacher giving us an assignment to make a poetry notebook. We were supposed to copy poems out of various anthologies she made available. I didn't mind doing this one so much and typed up my notebook very neatly, carefully selecting the poems.  But I couldn't resist putting a unique touch on it and the last one in my notebook was this:

Crowds may cheer
But never fear
They also jeer
And rarely hear what is intended
Or recommended
These uncivilized masses
English classes.

I think I got an A on the notebook.  And I do think she noticed. I may or may not have put 'by Anon.'

The One Thing That Connects Us All

Yes, I know I didn't write anything yesterday. Yes, I know. Holidailies has 'dailies' right in there.

At least I'm still here. Did you worry that something had happened to me?

At our age deaths of people we know come frequently. The parents' generation is pretty much exhausted. My dad had five sisters and a brother. He and four of his siblings married. (All one time, no divorces.) Of the twelve people, siblings and in-laws, only my one aunt remains. She was the youngest of all and is 86.

This year we lost a friend to complications after an accident. He was 46. He left behind a partner. We lost another friend at 85. He left behind a younger partner. The husband of a cousin of mine (she died young of breast cancer seventeen years ago) was found dead by one of his twenty-something sons recently. He was in his late 50's I'm guessing. Then we found out the son of a friend was found dead by his wife of an apparent heart attack. He was 48. Our friend lost his son's mother fifteen years ago. We visited with him and his current wife last night. It brings up the question: "Why are we still here?" Everyone dies. Why hasn't it been me? Oh, I'm still relatively young. But people my age, high school classmates, for example, are dying. I read the obituaries to see if we know anyone but also just to see how long people got and what took them (if the answer is there).

Knowing death will come is important. I worry about what I'd leave behind for FFP. What tasks I do for the family housekeeping and finances that I haven't thoroughly explained? What personal effects would lose their meaning and lurk in closets and storage and on my bedside to magnify the.grief? When I lost my parents their belongings looked so forlorn. There wasn't anything worth much but disposal was painful.

I need to plan for the time when I won't be here. It actually comforts me that I won't always be here. But I worry about not leaving things in a tidy bundle when I'm gone. I don't want to be any trouble in my inevitable disappearance. We all die. But first, we experience over and over when others pass.

In 2010, my dad left this tableau in the bathroom by his sink, went to bed, went into afib and had a stroke. I kept the watch in my car for a long time, until the battery ran down because the clock doesn't work in my car. Then I think I threw it in a donation bag.

Time Passes!

Dad's family 1944. Only his brother is missing. I think that may be because he was away in the Navy. This is during WWII, of course. My dad was rejected for conscription a few times for health. Eventually they took him, though. Except for his brother (who was not yet married) this is his family. I wonder if the picture was taken to send to his brother. None of the sisters are married at this time. His youngest sister, on the ground with my mother and infant sister, is no more than 14.

I have quite a collection of pictures (scanned from prints and originally digital) on my computer and various backup drives. I have several computers on my desk (don't ask) and when they are on they frequently go into screen saver mode and I have them flashing up pictures from a few collections.

When I look at old pictures I can't help but think about how much time has passed and how many people have passed with time. If I see the picture above I immediately think: they are all gone except that baby and teenager. The baby is now my almost 71-year-old sister. The teenager is my Aunt Cappy, featured yesterday. Only my granddad didn't survive to be in my life. But my grandmother, Dad, Mom and the other four sisters are gone now, too.

So much happened to these people. Eight more children would be born amongst three of the women in this picture. They would work and struggle and laugh and cry. (The Ball family, in fact, has a tendency to laugh until they cry.) The children would grow, the people in this picture would grow old, the children would have children and those children would have children. A couple of children would die before their parents.

This tendency of mine to look at who has been lost in pictures as they flash by doesn't feel morbid. It feels like celebrating lives lived and the struggle inherent in life. Let's see...there's a picture of my friend Al on the beach at Normandy, my mother with a snowman, two of our dogs (they are gone, too), my mom with us on the Capitol steps when we are children, my Aunts Mary and Dottie at my sister's wedding in 1965. And there's my friend Charles giving me a hug, So recognizable in these pictures on my screens but no longer in the world. Does this make me sad? No just nostalgic and maybe accepting that one is just a pawn in a long sputtering line of humanity trying hard to stop time but failing. Always eventually succumbing.

Danger!

The world is full of danger. It's much safer here in Austin, Texas than in, say, the Syrian city of Homs where two journalists were killed today. But Sunday a driver under the influence of something jumped the curb and killed a man and critically injured a woman on Guadalupe a couple of miles from here. We are hyper-alert when we walk, but danger always comes out of left field, doesn't it?

I find I'm in the best mood when I don't over think being safe and just accept that death and/or destruction will find me. One just has to do the best one can to stay safe and healthy and then just admire the way the world operates. Randomly within limits we don't always understand. When I realize how safe I am and yet how each and everyone and every thing is vulnerable, I can embrace the little delights like shop window photos, meals, museums and the people around me with the respect they deserve.

And to think...I haven't even read the obituaries today.

[Today's photo is a reflection on SoCo at the Parts and Labor store with the logo of Shark Attack Media.]

Goodbye, Friend

Sunset came on January 20, 2012 for my dear friend Charles Gentry. His obituary is here. On facebook there are scores of pictures and he's hugging someone in almost every one.

My thoughts on my friend:

Charles came into our lives as an exuberant participant in charity events, but I really got to know him when he needed a little help from his friends. After his brain injury he went through therapy and he lived in Tarrytown where only a few things were within walking distance for him. Somehow we fell into a habit of having lunch every month or so. He would bring along a notebook and write down things we talked about. He said his cognitive therapist recommended it as a way to work on memory and such. I know a lot of people were picking him up and taking him to appointments and exercise classes. My contribution to helping him through that time was small. But one thing that struck me is how he didn’t mind asking for help and he made you glad to give it, but he never felt sorry for himself or doubted that he would be able to return the favors one day.

One day we were going to lunch and he told me that he’d had all this time on his hands so he’d decided to clean out his closet and he had a lot of stuff to take to Top Drawer. (A thrift store supporting Project Transitions, a charity we both supported.) I volunteered to borrow my dad’s van and take his stuff to the store on our excursion and told him I thought I’d just bring my dad along for lunch, too. I remember how appreciative he was and how he made my dad feel his gratitude. (Dad also purloined a couple of things, including a large sack of bird seed.) I’m guessing Charles was planning a downsizing and a move to downtown even then. When we all moved to the 360, Charles and other friends and Forrest and I reveled in our ‘neighborhood’ and he never failed to exalt the glories of the downtown lifestyle when we’d go to lunch or we’d be at a party or even when we just randomly bumped into each other. He was living his dream and he always reminded me that we were, too.

We promised to take care of each other. When I found out what had happened to Charles, I initially felt I hadn't done my job. Then I realized that we really had taken care of each other. It’s sad that Charles’ journey went no further but I believe we all contributed to his life after his recovery -- because he let us in to do it. And he contributed to our community and took care of us, too; not least by making us see some true things about life and death.

I have been struck at how many people felt so close to Charles. We invited Charles to events, he and I had lunch dates and he threw parties and invited us. We weren’t the kind of friends who saw each other almost daily (and he had those). But everyone in his orbit has expressed how much they felt he cared for them. Because when we got together he gushed with enthusiasm that we’d met up and that he got to see us and that we were on this earth at the same time and the same place. Which is really what friendship is all about.

Where To Begin

After a long pause, I finally got around to writing a blog entry on Monday, November 14. I felt a bit adrift then. We were planning a little celebration (of our first date) with some friends. We had a trip to New York scheduled. (Which we took December 5-12. The above picture is our multiple reflections in one of the Bloomingdale Christmas windows.) I couldn't decide what, if anything to do about Christmas and the holidays. Whether to send cards, buy presents for anyone.

On November 16 my mother-in-law died. (The events of that day are somewhat interesting. See Forrest's description here.) That capped off a year and a half during which Forrest had a cancer scare and two surgeries; my dad died; his dad died; I disposed of my Dad's estate; he handled his dad's; and his mother died, leaving us parent-less. Then we begin disposing of his mother's estate.

There were three services, burials and such to arrange during what seemed like such a short time. There were fiduciary duties. There were (mercifully short) trips to MD Anderson, times in hospitals here. Three ambulance rides at the end for parents. Through it all we were very 'lucky.' Lucky FFP's cancer has apparently not spread. Lucky our parents didn't suffer too long. (My mother died in 2002 and, sadly, she did suffer a lot longer than I would have liked. My dad, of course, had his share of problems in the last few years.). But still. We were lucky. We had the money to handle things, for me to retire and take care of things for Dad after mother died. For Forrest to retire. We had time to see my dad through some trouble, to look after some things for his parents. We have the money now to not worry about money but just do what needs to be done with houses and stuff and all that.

Lucky or not, things are different. I realized after my dad died that I'd stayed young (in my own mind) and exuded confidence that I could take care of things trying to help him through his old age. Forrest did most of the things for his mom but her presence made me feel younger. Because she needed us, didn't she? Because we were young and strong and capable, right?

Now we can arrange to travel and not worry about what parental difficulties may arise at home. But, of course, we may find ourselves in difficulties. Can't really escape that.

We have kind of sleep-walked through the last six weeks. We went on with our schedule after a few days of handling my mother-in-law's services. We cleaned the valuables and mementos out of the house. We drifted through Christmas. I finally printed a few cards and sent them post-Christmas. We had a fancy dinner with friends on Christmas Eve and we were invited to a family gathering with someone else's family for Christmas Day. I didn't buy any presents except hostess gifts. FFP and I bought whatever we wanted and I sent money to my nieces and sister.

Now I wake up and it is 2012 and I'm vacillating between wanting to make some changes (blog, write my novel, exercise more, socialize with people, travel here, travel there, get rid of stuff, get new stuff) and wanting to roll down the shutters and be a recluse, changing as little as possible and buying nothing.

Where will I go with it? Will the blog record the journey or will I go back inside my head? Too early to tell. Going through old blog entries for the links in this entry make me realize that sometimes it does help just to write it down.

Who Am I and Where Have I Been?

These days I'm waking up feeling lost in my own life. The six months from Sept. 10-March 10 were spent in a perfect storm of death and illness and paperwork and duties. It ended all right, really, for those of us who survived. Our dads did "live a long life" as people say, often adding that it was a "full" one. I'm not so sure about the latter. FFP survived two surgeries and a lot of tests to come up allegedly cancer-free and also avoid radiation and chemo. It seemed like there were enough 'have to do' things every day to reduce decision making to a minimum. What follows is an eclectic recap of that six months, the time since and my life in general. It will undoubtedly end up sounding like an extended whine from someone with a charmed life. Because it is. However, I feel that I can't move on as a writer without publishing this. Odd, huh? I don't really identify as a 'writer' anyway. I made up business cards when I retired that said "Pretending to Write but Really Just Blogging." The other day I took a red pen to some of these and scratched out Write and replaced it with Blog. And Scratched out Blogging and replaced it with Tweeting.

The events of that six months have gradually faded. I'm putting together the last pieces of my dad's estate that will let me finally more or less settle it although the CPA says I'll have to file a tax return for the estate for 2011 or something. I'll address this when the time comes and pay anything owed out of my own pocket just to get things cleaned up. We have tenants in the house we own that Dad lived in. His stuff has been sorted and dispersed. (There's a job with potent emotional and physical toll for the healthiest among us. The whole process might also be the subject of another piece at some point.)

FFP got his dad's will probated and and got his mother's new widowed life somewhat settled. I've managed to start using a new mail server. (This was necessary for a weird reason and harder than it sounds. I hate this type of change.) As these things fell away, we started thinking maybe we should get away from duties and do more social and charitable things.

During this six months we did some social events in spite of trips to Houston's MD Anderson Cancer Center including surgery there for FFP, another surgery for FFP in Austin and the deaths of our dads. We even saw a few films in the Austin Film Festival and managed to attend the event we helped chair to raise money for AFF's Young Filmmakers Program. But we also didn't sign up for a lot of things, canceled events and gave away expensive gala tickets we bought before we knew what was going to happen.

As things settled out we went a little overboard agreeing to events and buying tickets to things. One day, we decided that we should buy SXSW film badges. At the point we bought them the price had risen to $500. (If we'd purchased them in September, when we were facing the big cancer threat, they would have been $375. The walk-up rate was $550.)

On March 10 we attended the unofficial opening of the SXSW film festival, the Texas Film Hall of Fame party. Some friends had purchased a table and were kind enough to invite us, gratis. (This is not officially a part of SXSW and the $500 badge does you no good for this one.) I learned what Ted Nugent looks like and how he sounds doing the Star-Spangled banner. I was reminded of how much I enjoyed FRIDAY NIGHT LIGHTS and of the familial relationship between Sissy Spacek and Rip Torn. I really enjoyed hearing about and from John Hawkes who I only knew from his performance in WINTER'S BONE. All of the above received awards at the event. (Well, not WINTER'S BONE but, rather, John Hawkes.)

I looked forward to seeing some films, especially documentaries, and being able to walk to many venues and feel the throbbing vibe of the huge SXSW machine while still being able to retreat to our condo.

I usually play tennis three times a week. I played on Thursday, March 10th, and again on Saturday, the 19th, making sure my film festival didn't need to start until that afternoon. I'd missed a lot of tennis dates during the six months of 'the troubles' but at that point I'd been getting to it pretty regularly, weather permitting. One morning I cleaned house, several others were spent regrouping from the arduous film watching or sorting out bill paying and such.

But I spent a good deal of time from March 11-19, nine days, watching films programmed by SXSW film. I didn't attend any panels, spent probably 20 minutes walking through the trade show and attended a party hosted by Austin Film Festival. I watched eighteen movies. I watched a few Q&As. I waited in lines for many hours.

I'm going to summarize that experience here, in a moment. But I reached the end of the festival thinking "I'm watching movies created by someone else, about lives that aren't mine, curated by these SXSW folks."

I decided I needed to be creative myself. Or, at least, be picking my own input (newspapers, books, magazines, movies, images). Yeah, at least I need to be doing my own aggregation! We spend so much time looking at what someone else tells us is worthy of our attention. Yes, I'm going to get creative on my own terms. I'm going to write. I'm going to work on my photography project. I am going to call my 'work' (based on my photos of shop windows and other reflections): Multiply Appropriated Portraits and Landscapes. But more on that later. Perhaps much later.

The Sunday after SXSW was over I finally got around to reading The New York Times magazine for the prior Sunday (March 13). This article resonated with me, expressing a feeling of disconnection from creation that surely critics and aggregators must feel. Bill Keller, executive editor of the paper, was, of course, speaking from a very different perspective. The original reporting he oversees is being co-opted by aggregation. But so is my brain. I no longer give myself time to have an original thought. Not even about whose thoughts to let in.

Yes, it's time to stop and reflect. Reflection seems in order. Reflection on the last couple of weeks and the last six months and, indeed, what I laughingly call my life. Reflection of this sort is so long overdue that it took me over two weeks to write this entry which is now a rambling mess but which I think I'll post anyway. As I said: not publishing it seems to be holding me back from my usual writer's block on other things.

SXSW
As I mentioned above...we bought those film badges. I canceled three tennis dates to clear time to pursue movies and whatever else came our way. We live downtown and we didn't have to fight traffic for the most part. Not in our car anyway. I didn't start my car for over a week. FFP started his three times I think. Others weren't so lucky, haplessly belching fumes while in gridlock or waiting for buses that never came or came too full to take them. Bike riders dodged cars, threatened pedestrians and had trouble finding a proper bike rack. SXSW was too crowded and on the edge of out of control. (Sometimes going past the edge.) People stood in endless lines to get into stuff or to get free stuff. We stopped by and got a free Pepsi Max, no line. Otherwise, we only stood in line for movies or credentials for the fest. I always feel like I should 'review' what I see although I am a hopeless critic (except of my own life). But I do feel the need to wrap it up. So here goes.

We often got to the venues too early (we call this being pathologically punctual), rarely tried to see two movies in a row, even at the same theater, and, with our badges, got into every movie we set out to see and got good seats. Of course, we probably stood in line 16-18 hours. We read magazines or used our iPhones to pass the time for the most part. We talked to people in line, getting ideas of what to see, learning some stuff about Formula One Racing, and meeting some neat people such as Photographer Brian Gray and actress Aimee Thomas. Lines can be at once the most frustrating and the nicest, most serendipitous things about the festival. We also saw lots of people we already knew in lines, while standing in them and watching people go by and in the venues. We saw movies at seven different venues. (Rollins Theater at Long Center; the newly-renovated State Theater; Paramount Theater; the Convention Center Theater, branded Vimeo for this festival; Regal Arbor; the Alamo Ritz; and Alamo South Lamar). We only drove to the Arbor, walking to and fro all the other venues from our condo.

We ate lunch on the patio at Trio at the Four Seasons on the Thursday before the festival began. Most of the time during the festival we retreated into the lounge at Ruth's Chris steakhouse or ate sushi rolls from How Do You Roll or subs from Thundercloud or prepared food from Royal Blue Grocery. Oh, we had a cheese plate at Highball and a few bites and drinks in the theaters. We had snacks and drinks at Manuel's when we went to the Arbor. Restaurants were jam-packed. On the first day of the film fest (the 11th) we thought we'd go to Frank but it had a wait. We did get a table at Second. After that we eschewed the choices popular with SXers.

My festival was almost derailed by my guts. During the second movie of the first day, I had some slight stomach cramps, a sweaty hot clammy feeling. Left the theater a couple of times to go to the rest room. Washed face. Felt better. But that night I lost my lunch, as they say. And I was fragile for food and drink for a day or two.

But we did see two showings that first day: BEST of VIMEO SHORTS and PAGE ONE: INSIDE THE NEW YORK TIMES. Both were at the Convention Center at the Vimeo Theater as it was branded for the festival. This is the uncomfortable chair theater. After these two shows we learned to sit on the front row of the risers, the most comfort you can get in that venue.

Some of the shorts shown were animated. I particularly liked an animation of sand and snow. There was a helmet cam video from a bike race over a harrowing urban course that was pretty fantastic, too.

I loved PAGE ONE. I'm an avid reader of the NY Times although I don't do a good job of keeping up with who's who at the paper. (After seeing this movie, I decided to pay more attention to bylines.) David Carr is an interesting character and the story he was working on (the bankruptcy of the Tribune company) was relevant to the overall hand-wringing over new media, newspapers, reporting, etc. The film touched on lots of issues: plagiarism, declining advertising revenue, Wikileaks, rise of aggregation, pay walls. The blogger turned journalist, Brain Stelter, added a face to new trends. I wanted to go home and gently pat my stacks of newsprint. I missed a tiny bit of the movie and some of the Q&A to feeling ill. I regretted that.

I didn't know how the first Saturday of the festival was going to play out for me. I awoke feeling better after getting up almost hourly all night to drink sips of water to rehydrate. I managed to get down a little coffee, a little Gatorade and we queued up for SENNA. The eponymous F1 driver was an enormously successful driver and a hero in his native Brazil. He was killed in a race. I didn't know any of that before deciding to see the movie. I knew nothing about this form of auto racing. Or really any form of auto racing. The movie was a very human portrayal, done without using posthumous interviews with people who knew him but rather using archival footage of him and of people speaking about him. My fragile constitution survived the 'in car camera' racing footage, too.

We tried to get express tickets to get into EL BULLI so that we wouldn't have to queue so long. There weren't any left. The idea that you get a badge and then you queue up to get a pass to get in front of the badge line is not the best idea SXSW ever had. We decided that we'd queue for the movie anyway. We went to the Driskill and relaxed in the cool lobby for a bit after taking advantage of their bathrooms. It turned out we were first in line for badges without special tickets. So we got the aisle seat that I thought I needed given my fragile condition. After watching starred Spanish chef Ferran Adrià make wild, innovative dishes I retired to Ruth's Chris lounge to test my stomach on a plain baked potato with a little cheese and sparkling water. I liked the food shots and people in the movie but the sound track was very weird in places.

So Sunday (3/13/2011) comes along and I've been to four screenings and already feel a little tired. It feels like work. I know how lame and elitist that sounds. The hour lost to Daylight Savings wasn't really missed too much, at least not that day, possibly because I didn't drink Saturday night. We start our fest day at a brunch given by Austin Film Festival for AFF alumni who are local or in town for the SXSW. I eschew the tamales and have a little fruit and a pastry. I pass on alcohol, too, which I often do early in the day anyway. We walk to Whole Foods and buy a few things including a growler of Dogfish Head Midas Touch which, of course, I won't feel like drinking just yet. We only make one screening. We go to Morgan Spurlock's GREATEST MOVIE EVER SOLD. Morgan is there. It starts late. It is, well, as advertised: a big advertisement with a message that we are always being sold to, even in movies. We go to Ruth's Chris I think. At home I try some Midas Touch. Not too much, though.

On Monday we decide to get Express tickets for the movies we want to see. There are badges. Badges are seated first. They are all equal whether Gold, Film, Platinum or Interactive (for certain movies they are admitted). The festival issues VIP tickets for cast and crew and the like to trump these, though. Then they got the idea to issue special pieces of paper to trump other badges. Sigh. (And there are also film passes, would-be single ticket buyers and people who pre-purchase a single ticket but may not be admitted but are admitted before other single ticket holders. Neither volunteers nor film-goers quite master this before the fest is over.) We get in line before this line up opens. There are at least a hundred people in line. We do get these special tickets but we've wasted at least an hour of our time getting them. Since seating can occur thirty minutes or a bit more before a show we will still have to waste at least thirty minutes per show in a line. In these lines we will be given another paper ticket to prove we were in line. Later in the week they will ditch the film express tickets, thankfully. We won't queue for them again.

We saw SMALL BEAUTIFULLY MOVING PARTS in the newly-renovated State Theater. I liked it very much. Gave it four stars. The theater that is. But also the movie was pretty good. Quiet movie about family dysfunction, parenthood and the connected world of technology. Starring Anna Margaret Hollyman who has been in some shorts we've seen and also in one of the 'bumpers' for the festival. (Apparently that is what you call funny little pieces that precede the films.) Family dysfunction will be a thread running through most of the narrative features we see.

We rested up a bit and walked across the lake and up South Lamar to the Alamo South. We were extremely early and we had those extra special express tickets. So we went to Highball and had a drink (me: Guinness for $2; he: Coke for free as DD although we told the bartender we were walking) and a cheese plate. What a great Happy Hour with pints for $2! We loved, loved, loved A MATTER OF TASTE. Sometimes filmmakers get so lucky. They start filming someone when they are struggling a bit to get a film made and the subject is struggling in his endeavors. Time passes. Something happens to the person (two Michelin Stars!) and the film gets finished and has a nice dramatic arc. So the filmmaker, Sally Rowe, was lucky, but also very good at capturing this journey. The chef at the center of this piece, Paul Liebrandt, was at the screening. He was so nice. He seemed to know who he was and what he wanted. We want to eat at Corton when we go to New York. And, conveniently, we've just scheduled a trip to New York in June. We made the dark walk home and got ready for another day. I think I showed my age by already being weary but, of course, I had gotten a bug or some sort of upset on Friday.

On Tuesday we go to the Convention Center again to see SOMETHING VENTURED. We got those front row seats in the risers. I would have been more comfortable if a guy with about the girth of The Simpson's Comic Book Guy hadn't slipped (well more like plopped) into the seat next to me well after the movie started. This is a great film about the history of high-tech start-ups and venture capital. The dominance of men, then and now, still upsets me, though, even over eight years after my retirement and after some success at beating the odds. That one of the entrepreneurs, now a venture capitalist, was someone whose company I once worked for made it uncomfortable as well. Too close to what I laughingly call my life. Too close to 'what might have been' and missed opportunities. At some point, walking through the trade show, I will also have flashbacks of working trade shows, trying to convince customers that my stuff is what they should buy, not the stuff peddled in the next booth over.

And then...we started a car. Yep. We (well FFP) drove out to the Arboretum area, stopped by our house (where Dad used to live, which is our rent house now) and then grabbed a quick drink and snack at Manuel's and saw a SXSW movie at the Arbor. BEGINNERS really grabbed me. It was a highly personal story, you see. It involved the death of parents. While my dad didn't reveal that he was gay after my mother died (this was a plot point that moved this movie along), I felt such a resonance with the material that I found real tears going down my face. I was especially moved by a pile of garbage bags. Seriously. (See above re: cleaning out the Dad house.) Great movie about loss and love and how to really live. Reminded me of seeing my dad after he lost my mom when he tried to capture some happiness after several years of bumpy health problems for her and sitting with her for 100 days in the hospital. That Ewan McGregor and Christopher Plummer were in this project comes as no surprise after you see the piece and realize the power of the script. I understand this film (written and directed by Mike Mills) is highly personal and semi-autobiographical. The 'happy ending' for the son distracted a little from the piece but overall I was so impressed that, honestly, I wanted to see the character break out and embrace a relationship. It will be interesting to see if this guy can write another great script using either material he is also this close to or material that requires a little more reach of imagination.

On Wednesday (we are at 3/16/2011 at this point) we spent the morning taking care of our lives. I cleaned the bathroom and the bedroom and took care of bills and stuff. FFP took care of some of his mother's business. But in the afternoon we queued up at the convention center theater for a showing of BOB AND THE MONSTER which is a documentary about Bob Forrest and his rock career, addiction, recovery and attempt to help others recover. It was quite interesting on several levels: music, drugs, recovery and redemption.

In the evening, we went main stream. Jodie Foster's THE BEAVER was showing at the Paramount. She directs and stars opposite Mel Gibson. We were probably in line behind a hundred people with the line stretching far behind us, around the corner, out of sight. Jodie was there, but no Mel Gibson. Forrest was impressed with her legs when she introduced the movie. In my opinion the movie's premise was just a little too wacky to support a real portrayal of mental illness. By that I mean that people went along with the puppet much more than they would in the real world. Yes, the beaver was a puppet. I predict it won't do well in theaters. So...it probably will! I find my tastes don't track with the mainstream. After Jodie did the Q&A and sidestepped the Mel questions we went to Ruth's Chris. I had a Manhattan. Yeah, it didn't take me long to get back to drinking after my stomach upset.

When Thursday rolls around it is St. Patrick's Day. The combination of the holiday and its drunken celebration, the SXSW music being in full swing and film continuing make the streets and sidewalks of downtown both amazing and daunting. It is a day when we will somehow manage to watch three movies. We do this by only going to the Paramount and doing what I said above we never did: seeing two movies in a row at the same venue. But it was the Paramount which is a big venue. Started with APART. Some movies ask you suspend disbelief. Let's say they ask you to believe people can have shared delusions. OK. Accepted. Then they ask us to believe these delusions are really prescient. OK, I'll bite. Then they ask us to believe that the delusions caused the protagonists to act out in the delusions. OK, we've come this far together. But. Then this piece ask me to believe that another character, apparently sane but upset over the death of his son, could instantly figure out the psychosis and initiate a plan to help the pair escape the horror they've caused and get cured. He would do this by committing a crime and covering up another crime. Well, no. Didn't wash. Wrap it up some other way and I'd have enjoyed the diversion. This plot turn stuck in my craw. After I'd allowed them so much leeway. I'd say that the above paragraphs were spoilers but somehow they really are not. Oh well. We should probably stick with movies that are strictly about family dysfunction.

As I said, we managed to watch two movies in a row by immediately going out and queuing for LIVE AT PRESERVATION HALL: LOUISIANA FAIRYTALE. To our delight the Preservation Hall Jazz Band came marching around the corner and entertained for a bit in front of the theater before going inside. When we got in they were performing some bluesy numbers with mournful singing. During the movie, the parts where the jazz guys played or they talked about the history of Preservation Hall were great. But the collaboration with My Morning Jacket was mostly painful to me because their music is so monotonous and dumb in my humble opinion. When their lead singer fronted the jazz classic in the title, that wasn't horrible (not great either) and sometimes a jazz guy accompanying the muck couldn't stand it any longer and just started to improvise and that provided some relief. Now I'm sure My Morning Jacket is a hot new band. Or a venerable hot band. So sue me. If I'm going to be spoon-fed by SXSW, I'm going to still try to retain the ability to form an opinion about what I like.

We regrouped, caught a snack and drink at Ruth's Chris and queued for ATTENBERG. It was very artsy. It had everything required of an art film. For my taste I just couldn't bond with the characters due to the silly sequences and inside jokes. But it was good at being artsy. And...we had seen three movies. Yeah.

When Friday, March 18th, arrives we realize two things: SXSW Music is in full swing and we have been watching movies for a week. I start to feel like an SXSWimp. I know I'm clueless about a lot of the music. (See above: My Morning Jacket.) I know that I don't like excessive drinking, loud claptrap or places that are too crowded.

We see that they are playing the Grand Jury Narrative Award winner at the Rollins over at Long Center. We haven't been to the venue during this festival. And we've heard good things about the film, NATURAL SELECTION. So we walk across Lady Bird Lake and queue up. Only two people in line and one is a gal we queued with at the Arbor, Aimee the Actress, and we enjoy some conversation. The movie's premises are improbable, the arc for the characters unlikely and the movie is thoroughly and completely raucous but somehow it's enjoyable and beautifully crafted. There were interesting subtleties of settings and nuances that redeemed any criticism. Roger Ebert liked it, too, although to me...that means nothing. I make my own decisions. It is my last shot at free will. NATURAL SELECTION could be described as dysfunction of non-family, but it had family complications, too, and that segued nicely into the evening's movie. ANOTHER HAPPY DAY is one of those films that I can both relate to (it was full of family dancing, as I call it, and anyone has seen a bit of that in life) and also feel divorced from (the family place on the Chesapeake is far from my reality). But there was the interesting reunion of cousins, the consternation as old age decimated the powers of the older generation, etc. Those things I get. I like seeing the multiple generations of privilege flailing anyway. Ellen Burstyn and Ellen Barkin were great and Demi Moore camped it up. It's easy to hate Thomas Hayden Church so he was able to make you hate him and yet feel a little sorry for him.

It is the last day. The ninth day! Saturday, March 19th. We see two films to make an even 18. For which we paid $27 each by buying our badges. We saw two documentaries this last round. The well-crafted WHERE SOLDIERS COME FROM didn't just give one pause about our current wars and their effect on young people who sign up for National Guard units for a bit of money. It gave me pause about the millions of lost young people with no idea of vocation or goals. I suppose they've always been out there. In an era without a draft they are most of our non-comm soldiers. They are ill-prepared by training and ill-prepared emotionally to fight a battle against IEDs. This film gives an inside look at one group of kids and their families and friends and shows how they could end up in uniform thousands of miles away after taking up soldiering with no more thought than their winter sledding or graffiti project. The film is also very revealing concerning how these families pinned their hopes on Obama to end the obligations their enlistment entailed and how they were disappointed to find little changed. And there is a priceless bit of film of a PowerPoint presentation about Afghanistan given during an army orientation. That alone was worth the price of admission. The return of these kids with their possible unseen traumatic brain injuries and exacerbated lack of focus is painful to watch.

The finale, the finish, the 18th film, is a documentary about Willie Nelson, KING OF LUCK. Billy Bob Thornton directed and it is one awesome piece of music history. We walked out more in awe of Willie than ever. Which was the idea I think: to make a paean rather than a bio. The current footage is presented in black and white to match the archival stuff. Willie is definitely one of a kind and here we see him with a bunch of unique friends and family talking about him. Great as it was...we were so eager to slip through the crowds and be in our apartment that we didn't stay for the Q&A with Billy Bob. Facing down a river of people headed toward E. Sixth, we made our way home and collapsed. Of course, soon enough a long fireworks show boomed across the lake and we stepped out on the balcony to watch it. It lasted so long I was glad when it was over.

At the end of the day, we did see some pretty good films. Ten documentaries, seven narrative features and one short program. But it was draining and I'm not sure it was worth it, all in all, to see all those in such a short period and stand in line that much.

As I write this I've actually been to two movies since the end of the festival. One was a preview showing of WIN WIN (also shown in the festival although we didn't attend). It is an intriguing tale of right and wrong and the mushy area in between, families and what they will do to each other and, at the end, for each other. Also...how the concept of family stretches to sometimes admit strangers. The movie didn't try to tell us everything, taking advantage of ambiguity to make it a bit more real. Which is to say they intentionally left unanswered questions about guilt, innocence and what would happen when the characters left the frame as well as what their complete history might reveal. All you knew for sure was that some situations do have a WIN WIN outcome but maybe not where we expect to find it. I liked Bobby Cannavale being cast as the over-enthusiastic friend, too, which reminded me of STATION AGENT.

We also saw a documentary about the Rural Studio Architecture project (CITIZEN ARCHITECT: SAMUEL MOCKBEE AND THE SPIRIT OF THE RURAL STUDIO). We saw this sitting on the rooftop of Arthouse at Jones Center on a chilly night. It is a nice doc. I'd heard the film makers speak about it before and was glad to get to see it.

We've also been to some benefits, a wine club party, a ballet mixed rep. And we made a round trip to Houston to have a check-up for Forrest.

I'm exhausted now, describing the last couple of weeks. Nevertheless, I want to keep writing, to keep blogging and to reach back through the last six months and try to write some sense into it. I don't know if it will work. In fact, I guess, from experience, I know that it will work but only to a small degree.

The Six Months
You come home from a vacation. You dad has had a rough time of it, been to the emergency room a couple of times, had to sweat out an AC repair during a blazing hot August at the house where he's living, our house, which we are responsible for. We've ducked our responsibilities for a couple of weeks of driving across the great American West and visiting friends. We've left him in the care of repairmen and friends.

We are not home for long and he needs to go to the emergency room again. Instead of relying on friends I have to ditch a party and take him. The next week I take him to the doctor and we think he's doing pretty well. I take FFP to the eye doctor where he will have what turns out to be the last of many excisions of a growth on his eyelid that is not benign, as the ophthalmologist thought for two years, but a rare cancer. I only go because he will have an eye patch for a few hours so I go to drive him home. It is a day I spend in doctors' offices but things seem to be going OK. The doctor does a biopsy. He says, "I'm pretty sure it's not going to show anything." Or he says something like that. We don't worry. Not at all.

Until the afternoon of the next day. We are sitting around thinking about what to wear for a black tie event that we will go to in a few hours. And the doctor calls. He wants to send FFP to an oculoplastic surgeon on Monday. Because he has a very rare cancer. Sebaceous Cell Carcinoma. Before we go to our event we have time to make the appointment. A new doctor is working us in. As soon as possible. We have time to search the Internet. Yikes.

Monday we see the new doctor. He refers us to MD Anderson. We will see a doctor there, probably the leading expert in the country (if not the world) on this type of cancer. On Friday. Friday is a race through tests and more tests and doctor visits. MD Anderson is a massive, daunting place but we make it through with a little help from the staff. We are given an appointment to come back on Monday and get needle biopsies of a mass shown through ultrasound in his parotid gland and one in his thyroid. The word metastasis creeps into our vocabulary. But. We will just take this a step at a time. And worry, of course.

On the weekend that the MD Anderson visits on Friday and Monday (and the three hundred miles of driving) surround, my dad is celebrating his 94th birthday. Fortunately, his two sisters and one brother-in-law have driven down to visit. A friend has a little get together for him on Friday night which we miss. We go through the motions of visiting with the relatives on the weekend and trying to explain what we know about the medical issues.

Monday brings needle biopsies. The parotid probe hurts more. The thyroid one is done twice. The parotid one is identified as benign. An adenoma. The thyroid comes up with Hurthle cells. The problem with this tumor is that it is probably benign but it can be cancerous and metastasize and you can only tell by removing it. This type of tumor is also rare, apparently.

But we have to take care of other things first. The eyelid. The cancer must be removed along with a normal edge and the eyelid reconstructed and biopsies done for skip lesions. They want to do a sentinel node biopsy. A head and neck surgeon will do this using traces from radioactive isotopes injected during a test and again before surgery. Into his eyelid. Without anesthetic. Ouch. Hurts to think about and it wasn't me.

We get ourselves prepared for all this, get hotel reservations near MD Anderson. We have a couple of weeks to ponder it and we try to go on with our lives. I get a haircut. I take my dad to get a haircut on a Friday. It's been two weeks since FFP's diagnosis. Dad says he's feeling a little weak. He complains about his blood pressure monitor not working and I reseat the batteries and fool with it and get it going. He jokes with the barber and looks good with his fresh haircut.

On Saturday I call my dad, as I do every morning for the most part. He says he is 'feeling better.' I guess I wasn't aware of how bad he felt the day before. I don't see him or speak with him again that day. The next day when I call, he doesn't answer on the first try. I try again. The phone is off the hook. I hear something but he can't speak to me. I tell Forrest, "I think this is it." I think of calling the neighbors. But they aren't friendly about being roused so early. I get in the car and drive out there myself. He is in his bed. Struggling for breath, gurgling a bit. I call EMS. They are there in a very short time. They ask me if he has heart problems. They say he is in afib. "That's never happened before," I say. They ask when he was last normal. He seems to have put himself to bed for the night. Or, could it have been for a nap yesterday? Later I see his tablet in the dining room beside his blood pressure monitor. He has recorded his blood pressure the night before and written the time: 8PM. The blood pressure shown, however, was a little was a little low for someone with high blood pressure: 94-58. Was he already in afib?

He is transported to the emergency room. After a CT scan they see he's had a massive stroke. They struggle to get his blood gases up. His heart isn't beating correctly so his pulse races but he isn't getting enough oxygen in his blood. The doctor mentions 'hospice.' By 6PM I've had a visit from the hospice people. They talk about transporting him to a hospice facility. I look at him and realize that we might as well stay here. I've called everyone. My Colorado relatives start making plans to come this way. I don't leave his side for long. The next morning a friend stops by to sit with him while I go shower. A lot of people visit and then they are all gone and FFP joins me. We slip out for a meal and the food tastes so good. I feel bad that it tastes so good. There's my dad, unable to swallow, on hospice care across the street. We rush back to his side. Even though they've removed the oxygen all together, he holds on for a while. And then: he's gone. While we wait for a local funeral home to collect him and arrange for his body to be transported back to Dallas where his burial will be, we call people, e-mail people. I feel a huge weight on me. FFP's surgery is a week away.

My nieces arrive the next day: one by car and one by air and rental car. Each has a three-year-old in tow. They switch gears from trying to see their granddad one last time to helping me arrange a burial in Dallas. He has sisters there, nieces and nephews, friends. We get the funeral home to call us the next day and arrange everything. One niece's van won't start so they switch everything to the rent car and set out for Dallas to put him to rest. They call their parents (my sister and brother-in-law) and tell them to go straight to Dallas. They reserve hotel rooms, order a casket spray and flowers. The next day they bury their granddad and the niece with the rent car drives back with her son to catch a plane back to Denver from Austin. The other niece and my sister and brother-in-law stay over and come the next day to get the niece's van going. I feel bad I didn't make this service but we will have a memorial a few weeks later in Austin. We will try to delay it long enough after FFP's surgery that he can make it. We succeed in this.

We find out on the day before surgery that unless FFP is willing to get a parotidectomy to rid himself of the adenoma the surgeon won't do the sentinel node biopsy. He doesn't want to operate on the face twice and the adenoma may one day cause trouble and require removal. This makes the surgery kind of a bigger deal. Anyway, we spend almost a week at MD Anderson. Child's play considering what some people I know have been through. But tough enough to suit me.

It is day surgery. In that he's not really admitted to the hospital. Only...we are there from before 7AM one day until noon the next. I thought I'd drive back that day. But I haven't left the hospital either, have gotten little sleep. He's had six hours of surgery, a little bit of a rocky recovery, has a drain coming out of his neck, his eye is swollen shut, etc. Luckily, they were able to repair the eyelid without grafting tissue from the lower eyelid. So he might be able to see out of that eye when the swelling goes down. Needless to say, we spent another day and night in a hotel room, sleeping, managing his drain, doctoring his eye, eating room service and entertaining ourselves with TV and iPod tunes. On Saturday I manage to drive him home. We managed for a couple of days, his eye gradually opening, me taking care of the drain stitched in his neck. On Monday we got his GP to remove the drain. That was a great relief. Gradually he gets better. News gets better, too. The sentinel node biopsy showed no cancer. We start getting out and going a few places.

Before we know it the holiday season is on us. Forrest's dad has his 100th birthday right before Thanksgiving. There is a come and go party at their house. It exhausts me and seems to energize FFP's parents.

FFP has another surgery, here in Austin, to remove half his thyroid and have a look at that growth in it. It is benign. So he keeps half a thyroid. He recovers fast from this although he's still recovering from his eyelid and facial surgery, too.

We continue getting out to more stuff. We eat in a brand new restaurant and, the next night, go to the ballet. FFP gets violently ill later in the evening. Food poisoning we think. It sends him reeling, the doctor giving this drug and that and he finally ends up getting an IV to rehydrate and gradually feels himself again.

And we think maybe we've turned a corner. I'd gone to court. I'd cleaned and sorted and discarded and donated and organized and executrixed my way through my dad's affairs and leftover things. It wasn't done but everyday...closer.

A new year arrives. We actually have a pretty good New Year's Eve, wandering the building to various apartments for partying.

The first day of 2011, we stretch and yawn our way through the day and settle in for some nachos and TV.

And the phone rings. And thus begins the fall for FFP's dad. A literal fall getting up out of a chair. A broken hip. Pain. Breathing problems with painkillers. Nothing to do but try to pin it. Surgery a success but patient's blood pressure never stabilizes. The next week we are organizing another funeral and beginning another bit of estate management and trying to help his mother through it all. Between the death and the funeral we have to make a round trip to Houston and get a check up on the whole cancer thing.

I keep trying to hang on to things that are 'normal.' I manage to play some tennis. Go out with some friends. Go out with Forrest to a restaurant. To do chores and projects around the condo. The house which had been so great for Dad becomes a burden without him. Stuff seems to multiply. Each thing has to be dealt with. But, finally, we remove enough to get the floors steam-cleaned. And we find friends to lease from us.

And it's tax time and I spend time getting all the tax things underway. For us and my dad. FFP does his mom's. The CPA and I wade through the business stuff.

Then it seems like we've come out the other side. At this point that we start to play a little fast and loose. We think we can do things. Like get our money's worth out of a SXSW film badge, make it to some galas, go out with friends. I think I can really conquer the chores and stuff around the condo now that I'm not sorting detritus from the life of dad and mom and playing the companion role for the sick.

Of course, we over-commit. Of course, I start to feel nervous and distraught. I toy with solutions. Becoming a recluse watching old episodes of "Northern Exposure." Spending more 'analog' time. (Reading newspapers and books, writing in longhand, playing tennis.) Going through tasks meticulously from left to right, top to bottom, believing that you can conquer. Scheduling trips to look forward to. (We have only been out of town to drive back and forth to Houston for medical treatment for over six months.) Trying to write about what's happened. What's working? What isn't? Hard to say.

How'd I Get Here?
It's funny, isn't it? How your life is just one thing, another thing and then there you are, living with a man you've been married to almost 35 years owning a ten-year-old Honda Civic with an insult on every body panel, a condo, a tennis racket older than the car. Your health is good as far as you know. You are living an urban lifestyle. You feel you've done your duty these last six months, these last ten years, your whole life. You've been responsible. Paid for your mistakes. Paid your debts. Paid your taxes. Not stolen from anyone. And here you are. So I'm going to explore that further. I'll enter some more blog entries here, segueing from images and ideas into an always incomplete but exhaustive exposition on "who is the Visible Woman and why does she do that?" Or not. Maybe I won't write another thing in this space. After all, I've been working on this entry for over two weeks and I'm still not sure I'll publish it.

Quit Whining and Pay Attention

It's been a surreal fall. Tomorrow I go to court for my dad's will probate and I was thinking "Life will somehow be 'normal' when I've gotten all that taken care of." Yeah, sure. Life is never 'normal.' It's always FUBAR. Anything else is an illusion. You just have to take the blows, feint left or right, dodge, go on.

FFP sent out an e-mail saying his latest surgery didn't find cancer. Yeah, we are happy and thinking about being festive and such. Someone replied that their journey was taking a different turn, toward hospice. And then we saw in the paper that our friend died on Sunday. I heard that my aunt had a fall. Don't know where that's going but they took her to a big hospital in Dallas from the suburb where they are living. Fortunately she's near Dallas, near my cousin. She doesn't have children, just nieces and nephews. So I'm glad my cousin's wife is there to help her husband. And her.

I have a feeling that I have got to quit whining and pay attention to things. But, of course, I feel like celebrating FFP's good news of the day. (The permanent sections confirm: no cancer in the thyroid. Turns out the tumor on his eyelid was the only thing that was cancerous.) I told him that for Christmas I wanted to dine in nice restaurants and he made a reservation for tonight at one of the best. Now, of course, I'm worrying about other people. Those not so lucky. But you just go on. You do. Grabbing what joy you can. Whining when you have no right and not paying proper attention to your duties. Fact is, we walked to a place for breakfast this morning and while crossing Congress, solidly in the crosswalk with a walk signal, a guy ran the light, managing to stop only after getting well through the intersection. FFP alertly grabbed my arm and we halted as he passed a few feet in front. I really, really have to try to pay attention even as I keep whining.

We took cabs back and forth to Jeffrey's last night so we could both drink and had delightful food and wine. We are lucky. No whining. Awareness.

Lost Me

Normally I have a real good idea who I am and how I am feeding my own selfish desires. The last three months have been trying in this regard however.

My dad died. My husband needed medical care. My dad's affairs needed to be concluded. I began to worry about my in-laws more because, after all, they are 90 and 100.

So lately I keep asking myself: Where am I? What am I supposed to be doing? Why didn't I get to do the things I dreamed about when I managed to retire early and not completely broke?

I am selfish. I know I am very, very lucky. I have resources both physical and monetary against the onslaught. My husband is going to be fine. For now. One day we will all not be fine. The problem is that that day seems all too imminent of late.

And so....while others are shopping, decorating and celebrating...I'll be helping FFP through a surgery and recuperation and perhaps reading and blogging and pondering the rest of my life. I have made one or two momentous decisions: I won't do a holiday card for the first time in a very long time and I will blog in this space every day until the new year. I will write complete sentences. I will punctuate as well as I know how. I will complete thoughts and write my demons off in pixels.

Dad

This is my dad around Thanksgiving 2002. He was getting ready to go on a trip to Germany with a friend. He'd gotten over the mental and physical ravages of my mother's hundred days in the hospital earlier that year. After this he would have some other trips, get to meet two additional great grand kids, enjoy events with friends and family, lose scores of friends and family members and suffer a number of physical indignities brought on by time (and occasionally doctors' attempts to reverse it). On Sunday morning I made a welfare call to the house where he was living alone (with assistance with cleaning, cooking, errands, lawn, etc.). This was the one you dread. I found him in his bed where he'd neatly organized himself for the night and where he'd had a heart attack and a stroke. Thirty-six hours later he died. Dad was very much a presence for me, especially the last ten years since he moved to Austin. I cared for his needs the best I could. We had a couple of fun road trips together after my mother died and I retired. He kept his sense of humor until the end. I don't think I could have done.

My Thoughts and Prayers

When someone is ill, people pray, send good thoughts, send cards and letters, visit, call, bring food. bring plants and flowers and other presents and volunteer to help any way they can. It makes a difference, of course, that support and help. But it isn't a cure. It's not that support might not help you get well. It's just that the support that truly might help is the diligent relative or caregiver managing the real problem. In the end, no one can save anyone. Not forever not from everything.

If you think inserting yourself in pre-op patient prep room to pray helps medically you are wrong. You are in the way. If you think bringing a plant, a green jello concoction and telling relatives that they don't know what they are doing vis-a-vis the patient's care is just the ticket to restore your friend to the healthier person you enjoyed...well you are wrong, too. You might give your friend a nice visit and some hope but you aren't saving the day.

Cards and letters are appreciated and sometimes give the person the spirit to fight on, but they're not a cure. I was surprised that my sister saved funny letters I sent to her while she was fighting to recover from hemorrhagic and ischemic strokes. They were fun and she liked them which pleased me, but it was therapists, the family close to her, the docs and her will that got her somewhere, that helped her recover to a certain point. I sent the letters because I was far away and helpless to help her.

And when people say "if there is anything at all I can do?" Yeah, most don't mean anything really. Particularly not the tough hands on patient care. Certainly when I say it I don't mean it. It's hard enough when you are the primary caregiver and can't avoid it.

Dad's last ditch fix appears to have failed after three weeks or so. We went to the emergency room for the second time in the new year today. I am tired of being asked to speculate on what is happening inside him, what his doctors think. Yes, it' moderately helpful having me around to recite his facts since reading a chart seems to be a lost art. So I may actually help him get better or at least get comfortable. My thoughts and prayers, though? My opinion is that they are at best placebos. Maybe yours are more effective. But really I don't think so.

Today I will write a sympathy card to someone who is grieving. It won't really help the grief process but it is the right thing to do. Just like all those cards, letters, prayers and good thoughts coming my dad's way. They are mostly the right thing to do. Except get out of the way and don't second guess the caregivers.

Only One Guarantee

We plan and plan. Our lives and bodies break down. We rehab. But there are no guarantees.

Talk of things like banking reform and health care reform and stimulus are infused with ideals of a precious world where everyone is healthy and happy and has a good job and owns a home until they die, peacefully and suddenly in their sleep albeit they are apparently perfectly healthy, leaving their estate not to their heirs but to the government because, after all, their heirs are living the dream on their own, too.

Never mind that health care reform is really health insurance reform and is not long on ideas in any of its thousands of pages about how we might live more healthy lives until we die. We are dreaming the dream.

But life is devoid of guarantees save one. Death.

I think you should always back into health care reform. You should say 'everyone will die.' Then you should wonder what is most humane in caring for people. Should we try to eliminate heart disease, stroke, hypertension, Type II diabetes, cancer? Just how heroic should our care be when the odds are against us? When the Obama team suggested that insurance should be required to cover end-of-life counseling, that was the most sane thing I've heard in the months-long debate. When the proposal was distorted into death committees? Well, maybe we should have them. Only, of course, the bureaucracy of them would be ridiculous like most of our government-regulated health care.

Everyone plans to live, get healthier and richer. This striving is not bad, in and of itself, but a realistic look at the march of time might help us make better, more realistic choices.

And those are my sparkling, holiday thoughts. Perhaps more appropriate for the Easter season where death brings renewal.

Scarier Than Halloween

Some people like scary movies. They like being scared? That's what they say. I've finally learned to watch scary movies by disassociating. It's a movie. It isn't happening. It's easier with fanciful big monsters crushing toy cars and trains. I used to hate 'scary music.' You know, the stuff they play to heighten the scenes when you want to yell at an actor to not open a door or go off alone or some such. FFP would watch something on TV and it would have scary music and I'd yell my disgust from the other room.

I've gotten better. Really. But still. Real life scares me enough.

I am not scared of death. Not mine, not anyone's. The fact of it, that each of us 'owes one' suits me. No. I know one day a bus will come my way or there will be some other accident or, more likely, now that I've made it through all these decades, one or more organs will quit doing their work.

Not afraid to die. Know that the choices for friends and relatives are stark, too: mourn me or I mourn you.

But, really, everything leading up to that state is scary. The world is a frightening place. Sure I feel safe just now in my condo. More or less. Lots of people are looking over their shoulders every moment. But I know things are stalking me and my family. Disease and decline.

Every day we read about wars and financial crises and hate crimes and running out of health insurance. Bad things happen to people we know and people far away.

Who needs Halloween to get scared?

[SoCo shop window reflection entitled "Day of the Dead Shadow."]

Schadenfreude

Does it make you feel better if some smirking (once) rich guy gets 150 years in prison? Does it make you feel better if someone who has made you feel small, called you names or dismissed you has some grief? Does it make you feel better to see oppressors jailed or killed?

The word schadenfreude is from the German. It means damage joy. If you are flying high and people you think are a??holes are underwater, can that bring you joy? Even if you are just rocking along just the same does a bit of trouble coming the way of a perceived tormentor do your heart good?

I'm pretty sure I'm hiding and watching a number of people to see if they 'get what they deserve.' Or what I think they deserve. Sort of in the manner of those town folk in "The Magnificent Ambersons" waiting around to see if the obnoxious Georgy gets his 'comeuppance.'

But you know what? It doesn't give me joy to see the descent. It's more that instead of feeling bad for them I'm just not cheering them on. Mostly I get my pleasure from a casual indifference to their success or failure. A few less people on the planet I have to feel bad for if things don't go their way.

I just wish people wouldn't have given me a reason to not wish them well. That things had been different, that they had been honest and generous. That they had not placed themselves above me and others. That they had not set themselves up for the fall. I'd just rather folks all made me want to see them do well. But it would be exhausting, too.

Everyone will reach a nadir even if it is just the final extinguishing of life, that moment when we can no longer cling to this realm. (If you are going to some heaven, well, yeah that's the last revenge from my unkind thoughts I suppose if you've offended me.) How horrible to have people smiling at our inevitable defeat. I think there are probably a few people who will feel my ultimate demise will be a victory and who will take joy in dips in my life. Certainly there are people out there wishing me ill or, at least, not hoping for the best for me. But I don't think there are many. Most of us are indifferent to most of the rest of us. The Madoffs managed to alienate a lot of people in a big way but, yeah, they had to really work at it.

Anyway, much as I like the word, I don't think I have much use for damage joy. Like those that awaited George Amberson's comeuppance, it's all too easy to simply forget all about it. And find what joy we can make of our own existence.

[Photo today is a shop window reflection from New York City.]